RecruitingChildhood Hematopoietic and Lymphatic System NeoplasmChildhood Malignant Solid Neoplasm

Quality of End-of-Life Care for Children With Cancer

Eligible age

18+ yrs

Accepts

All genders

Locations

10 states

Healthy volunteers

Yes

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About this study

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.

Sponsor: Children's Oncology Group

You may qualify if…

✓ Index Child (COG Registered Patient):
✓ Must be deceased
✓ \< 18 years old at time of death
✓ Diagnosed with any oncologic condition
✓ History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild
✓ Note: history of treatment on a COG therapeutic trial is not required
✓ Resided in the United States, including Puerto Rico, as evidenced by most recent address, at the time of death
✓ Bereaved Parent(s):