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RecruitingNeurodegenerative DiseasesLeukodystrophyAtaxia

Home Exercise for Individuals with Neurodegenerative Disease

Eligible age

5–75 yrs

Accepts

All genders

Locations

1 state

Healthy volunteers

Yes

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About this study

The primary goal of this study is to address the need for targeted therapeutic interventions for impairments that impact walking in related neurodegenerative diseases.

Sponsor: Hugo W. Moser Research Institute at Kennedy Krieger, Inc.

You may qualify if…

  • The eligibility criteria for males is X-linked adrenoleukodystrophy as determined by biochemical determination or genetic testing.
  • The eligibility criteria for females is X-linked adrenoleukodystrophy as determined by biochemical determination, genetic testing, or pedigree analysis.
  • The Leukoenceophalopathy with brainstem and spinal cord involvement and lactate elevation inclusion criterion is a confirmed DARS2 mutation through genetic analysis.
  • For people with cerebellar ataxia, people with diagnoses of cerebellar damage from stroke, tumor or degeneration will be included. Those with a genetically confirmed cerebellar disorder will be asked to provide their genetic testing to note their particular type of ataxia.
  • We will also include patients with other neurodegenerative diseases similar to these disorders as determined by chart review and clinical exam.
  • Healthy Volunteers
  • Able to stand for 30 seconds without upper extremity support
  • Ambulatory (including use of a cane or a walker)

You may not qualify if…

  • Other medical or psychological conditions which in the clinical judgement of the investigator would interfere with acquiring the study information or performing the exercises safely including but not limited to:
  • Uncontrolled hypertension, orthopedic conditions, diabetes, seizure disorder, peripheral vestibular loss, severe aphasia, dementia, pregnancy

Where it's recruiting

Maryland

Baltimore

Source: ClinicalTrials.gov · NCT05443906 · last updated 2025-03-10