Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry
Eligible age
All ages
Accepts
Women
Locations
9 states
Healthy volunteers
No
See if you qualify for this study
Answer a few quick questions about your location and health. Takes about a minute.
About this study
INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.
Sponsor: University of Colorado, Denver
You may qualify if…
- ✓ 1. Individuals with TS and TS variants as defined by the TS Clinical Practice Guideline definition (karyotype consistent with TS, phenotypic female, clinical feature(s) of TS)
- ✓ 2. Informed consent/assent as appropriate
You may not qualify if…
- ✕ a. Lack of a TS diagnosis on file
Where it's recruiting
Aurora
Washington D.C.
Glenview
Lawrence
Chapel Hill
Cincinnati · Columbus
Philadelphia
Houston
Seattle
Source: ClinicalTrials.gov · NCT05052606 · last updated 2024-10-01