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RecruitingAlpha 1-Antitrypsin Deficiency

Alpha-1 Research Registry

Eligible age

All ages

Accepts

All genders

Locations

1 state

Healthy volunteers

No

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About this study

The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.

Sponsor: Alpha-1 Foundation

You may qualify if…

  • Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
  • Alpha-1 carriers (PiMZ, PiMS etc.)

You may not qualify if…

  • Failure to provide informed consent
  • Normal healthy individuals (MM)

Where it's recruiting

Florida

Coral Gables

Source: ClinicalTrials.gov · NCT04157049 · last updated 2024-01-30

Alpha-1 Research Registry · TrialPath