RecruitingSudden Unexplained Death SyndromeSudden Unexplained Death in Childhood

Sudden Unexplained Death in Childhood (SUDC) Registry

Eligible age

0.9–100 yrs

Accepts

All genders

Locations

1 state

Healthy volunteers

Yes

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About this study

The purpose is to increase the understanding of the characteristics, circumstances, medical histories and pathologies of children from ages 11 months through 18 years who have died suddenly and unexpectedly, and in some instances, without explanation. The SUDC Registry and Research Collaborative will analyze cases of sudden unexpected deaths in these children to understand risk factors and causes, and develop preventative measures.

Sponsor: NYU Langone Health

You may qualify if…

✓ Retrospective SUDC Cases
✓ 11months to 18 years of age.
✓ Subjects whose cause of death was sudden and unexplained-"Postinfancy SIDS," "Sudden Death of Childhood," "Undetermined," "Late SIDS," a vague description of symptoms of "undetermined etiology," or a diagnosis acknowledged to be speculative by the prosecting pathologist
✓ If the retrospective case has banked DNA specimens.
✓ Prospective SUDC Cases
✓ SUDC cases, parents and eligible family members from 11months-100 years of age.
✓ SUDC Subjects whose death was sudden and unexplained after the initial autopsy, and in whom a scene investigation and full autopsy was performed.
✓ Family Members Subjects

You may not qualify if…

✕ SUDC Subjects
✕ Subjects that are younger than 11months or older than 18 years of age will be excluded as a SUDC case.
✕ Prospective SUDC cases of apparent suicide, homicide, and accident where the external cause was the obvious and only reason for the death will be excluded from this study.
✕ Family Member Subjects Any siblings or second degree family relatives that did not have a history or current heart or neurology condition will not be able to enroll in the study.

Where it's recruiting

New York

Source: ClinicalTrials.gov · NCT03109197 · last updated 2025-10-30