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RecruitingHypoplastic Left Heart Syndrome (HLHS)

National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

Eligible age

Up to 1.3 yrs

Accepts

All genders

Locations

33 states

Healthy volunteers

No

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About this study

The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.

Sponsor: Children's Hospital Medical Center, Cincinnati

You may qualify if…

  • Fetuses or newborns diagnosed with HLHS or other univentricular condition
  • Intended to undergo Norwood procedure

You may not qualify if…

  • None

Where it's recruiting

Alabama

Birmingham

Arizona

Phoenix

Arkansas

Little Rock

California

Los Angeles · Palo Alto · Sacramento · San Diego

Colorado

Aurora

Delaware

Wilmington

District of Columbia

Washington D.C.

Florida

Gainesville · Miami · Orlando · St. Petersburg

Georgia

Atlanta

Illinois

Chicago · Oak Lawn

Indiana

Indianapolis

Iowa

Iowa City

Source: ClinicalTrials.gov · NCT02852031 · last updated 2025-06-19

National Collaborative to Improve Care of Children With Complex Congen · TrialPath