Primary Tumor Research and Outcomes Network
Eligible age
All ages
Accepts
All genders
Locations
7 states
Healthy volunteers
No
See if you qualify for this study
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About this study
This project aims to establish a network of spine oncology centers dedicated to prospective multicenter research of patients diagnosed with a primary tumor of the spine and will include a comprehensive prospective clinical database which will serve as a shared research platform. Demographic, clinical, diagnostic, and therapeutic variables will be used to answer questions about survival and local recurrence, as well as questions about adverse events (AEs), morbidity data, and health-related quality of life (HRQOL) outcomes.
Sponsor: AO Innovation Translation Center
You may qualify if…
- ✓ Patient with a current primary spine tumor or history of a primary spine tumor, including tumors within or surrounding the spinal column and/or spinal cord. This includes extradural tumors, intramedullary tumors (i.e. astrocytomas, ependymoma, etc.) and extramedullary tumors (i.e. meningiomas, neurofibromas, schwannomas, etc.).
- ✓ Informed consent obtained, i.e.:
- ✓ Ability to understand the content of the patient information/ICF
- ✓ Willingness and ability to participate in the registry according to the Registry Plan (RP)
- ✓ Signed and dated EC/IRB approved written informed consent
- ✓ OR
- ✓ Written consent provided according to the IRB/EC defined and approved procedures for patients who are not able to provide independent written informed consent
You may not qualify if…
- ✕ \- Patient diagnosed with a metastatic tumor of the spine.
Where it's recruiting
Los Angeles · San Francisco
Baltimore
Boston
Rochester
New York
Providence
Houston
Source: ClinicalTrials.gov · NCT02790983 · last updated 2026-02-25